Discovering chronic pain on Reddit

I would love to be sleeping right now, but instead, I’m trying to distract myself from insomnia by discovering websites where I can find the stories of other pain patients (survivors).

Patients on this Reddit thread are discussing their current difficulties because of the opioid war, and it looks like a know-it-all pain doctor felt compelled to add his “expertise.”

https://www.reddit.com/r/ChronicPain/comments/4kdklo/opioid_induced_hyperalgesia/

ityprpain doc, 1 day ago
Opioid-induced hyperanalgesia is not rare at all. It happens to almost all chronic pain opioid users… Disclosure: I am a pain dr…

If your pain doctor has this kind of strong belief in hyperalgesia, I would start looking for another pain doctor right away. Because hyperalgesia is rare, at least according to pain patients. Your doctor’s belief in this unproven theory just means he has an excuse to cut you off. Or force you to again try other, more expensive treatments.

There is nothing that “happens to almost all chronic pain opioid users,” except maybe poverty. Oh, and of course, almost all chronic pain patients taking opioids obtain some level of pain relief. A small percentage of this patient population will suffer from addiction, but no one knows exactly how much. Most would say it’s around 5%, which is lower than the addiction rates found in the general public. But, as this Reddit poster (orangesunshine) said:

Though I thought we had decided that worrying about this risk of “addiction” made little sense in a population at significantly higher risk of suicide …

Mr. Pain Doctor has more to say (of course):

In proper opioid pain management, once short acting opioids are tried and the pt is in need of around the clock pain management, you switch to a long acting opioid to cover your “baseline” pain and then use prn IR opioids to control breakthrough pain, hopefully less than twice a day. I say “proper opioid pain management” because most drs, especially PCPs do not properly rx opioids to chronic pain pts.

Yes, this is the current thinking on opioid treatment, but I don’t think it works with the new CDC rules. And I’m not sure this theory works for most pain patients, either. You won’t know which drugs will help until you try them. Unfortunately, as can be seen in this Reddit thread, doctors are forcing patients off of opioids, and replacing them with drugs that are ineffective and have worse side effects.

Or replacing pills with patches. I tried fentynal patches a long time ago, and I don’t think any drug made me as nauseated as that one did. I laid on the couch for hours and hours, waiting for the nausea to subside and the pain relief to arrive. Unfortunately, that never happened. I tried one more time, with the same results. (Yes, I’ll say it again, doctors suck.)

Mr. Pain Doctor says the future in pain medication lies in Ketamine, which may become more available in 3-5 years. I’m not sure I agree, but I don’t know if my disagreement lies in my dislike for Mr. Pain Doctor or not. LOL. Any doctor who says that hydrocodone and oxycodone don’t work for long-term chronic pain doesn’t know what he’s talking about.

Mr. Pain Doctor’s view of the future in research:

ityprpain doc, 22 hours ago
“Also if you’re going to publish something it’d be nice to see someone do a review that looks at which opioids have the best efficacy in the treatment of long term chronic pain.”

There is nigh zero chance of that happening.

Melting_Phoenix, RA/failed back surgery/nerve damage, 9 hours ago

My neurosurgeon was prescribing my pain medication after my failed spinal fusion (this was 2 years ago) and he referred me to a pain clinic that was willing to do anything but prescribe me meds. I have spent that past two years trying every non-opioid med, nerve blocks, epidurals, CBT, facet injections, PT but nothing helped. I wish my brain chemistry was different and something like gabapentin actually helped me but it did nothing. The only way I was able to manage the pain and keep working was by taking pain killers and I honestly didn’t have any side effects except occasional constipation. Every doctor I have seen I have been totally honest with. I give them my medical records showing I have nerve damage and showing that I have tried everything and only painkillers helped lessen my pain. Apparently saying pain killers help my pain means I’m a drug addict.

I used to do bio-med research and I try to keep up with recent research. I’m sure there will be better drug options several years from now but I’ve been to the ER 3 times in the past two years wanting to kill myself from the pain so I don’t know if I can wait that long.

I know it’s hard for doctors because they don’t know who they can trust to be honest, even with drug tests people can still be selling some of their pills on the side. And I know they consider people with depression at a higher rick for overdosing so I do regret admitting that the pain made me depressed.

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16 thoughts on “Discovering chronic pain on Reddit

  1. Hey Gurl!!
    Sorry to hear about your insomnia …We sure can relate to many different things huh lol..
    I have been seeing a change in how the office at my pain specialist is changing things up…More paperwork to sign now each month the same form..saying things like no I will not share my medication..No I will not sell…I will only use it as it states and what my dr tell me..you name it, it’s on it..They can add more paperwork and please sign here and oh yes YOU ARE STILL IN PAIN
    I am really getting tired and pissed off ..Is this what I have to look forward to for the rest of my fucking life?? It is just to much today with the rain and a flare going on..But WE are the ones that suffer in silence or shall we both scream at the fucked up system…???..
    Dad has a dr appt today at 3pm and this is one time I wish I could cancel it at least it is in Greenville ..next town over not to far ..It’s going to take everything I have to get ready and go with him..At least better half is driving us lol..oh how I wish the dr would call and cancel sick I hope it’s a quick visit ..I so want to go in the other room and call them and cancel haha But he needs to see koko dr…But if she tries to put him on another medication that we know he can’t take I will CUT A BITCH LOl my new saying for now …
    Well I hope that you are resting or got some sleep?? what are your plans for today gurl?? How are you feeling??
    Huggggggggs
    Me..

    Liked by 1 person

      • Hey my dear gurl!!!!
        I thought I would check on ya and see how that not thinking of sex is working for you lmmao…..j/k
        Breath …in…Breath….out…….yeah like you said…..in and out in and out yyeeaahh baby lol

        Liked by 1 person

      • Still thinking about sex gurl???? heheh
        I know if I don’t quit listen to janet jackson I am going to be with you in the same boat lol…well hell OK I can not lie …I think about sex too so see your not alone lol…let’s talk about sex baby let’s talk about you and me lmao….you want me to try hard and write something about sex??? lol

        Liked by 1 person

        • I’m sure there are very few people who never think about sex. But I’m a woman and I can control myself. Do you want to try really hard to write something about sex? Why not, dude? 🙂

          Liked by 1 person

        • Oh I know gurly gurl ..I was just giving you a HARD time…Oh yes we are normal well the best we can be lol and yes think about sex…that is sure one of many things that makes us different from guys is that WE do have control..well unless drinks involve and um other things lol…
          I was playing on the words when I asked you if you wanted me to try HARD to write something about Sex…but hmmm I may soon…
          Like I said I was listen to jj and well sex and more sex please yes I would like that tooo..

          Liked by 1 person

        • YES, but you in there to long even for a shower and dad is like…are you ok in there???? like leave me alone already lol…I swear I am not safe or alone no fucking privacy………………………….lol

          Liked by 1 person

        • nope, NOPE I know how it is done gurl lol..But thank you for the offer at hand lmao…Hell I was laying in bed and cough and out of the next room dad yells are you ok in there..my god gurl you have no idea here………I can’t walk to the bathroom at any given time and he will ask me something but never can hear me when I am talking to him …lol ..hmmm …I had the musik on last night lol …and he didn’t sleep all night blame his medication…lol…

          Liked by 1 person

  2. I think Mr. Pain Doc is confusing Hyperalgesia with Tolerance.

    He’s not aware that Hyperalgesia is the unusual condition of opioids increasing pain, not just a person becoming tolerant and needing higher doses (which also doesn’t seem to be happening with most patients).

    Liked by 1 person

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