(In the future, any additional comments I make to the CDC will be added to this post.)
Your Comment Tracking Number: 1jz-8n0y-9e3t
Isn’t it odd how the comments cannot be put in date order, even though there’s an option for that? And isn’t it funny how the pro-CDC comments almost always appear at the top of the thread, even though they’re out of date order? Are the comments out of date order so the CDC can bury certain comments that it is forced to post?
And wouldn’t it be nice to know why the CDC is banning certain comments? The only rules appear to be: “those containing private or proprietary information, inappropriate language, or duplicate/near duplicate examples of a mass-mail campaign.” I’ve read hundreds of comments approved by the CDC, many of which have information that could be considered private and/or proprietary.
You know, pain patients are smarter than your average person — it’s a matter of survival. We’ve been fooled and tricked too many times to fall for the bias and discrimination exhibited by the CDC in this process. In other words, I’m not the only pain patient who believes that the CDC has already approved the guidelines and the only reason for allowing comments at this point is for the sake of appearance.
Your Comment Tracking Number: 1jz-8n0y-cuca
Are guns the answer for pain patients? I was just wondering if the CDC has found a correlation between the creation of its opioid guidelines and the increase in gun sales. Because I’m thinking that some pain patients have already given up on having their pain adequately treated and have chosen the only other alternative. After all, it’s both cheaper and easier to buy a gun than it is to access pain medications.
Your Comment Tracking Number: 1jz-8n13-p39u
The ghosts of Robin Williams, Amy Winehouse, Whitney Houston, and Scott Weiland want to remind the CDC that their deaths had nothing to do with the treatment of chronic pain. (See, even the dead can tell the difference between drug addiction and chronic pain.)
Your Comment Tracking Number: 1jz-8n2b-w4cw
For the last year, I’ve been collecting the stories of pain patients (including cancer patients) and posting them on my blog (All Things Chronic) under the category “Voices of Pain Patients.” Most of these stories weren’t found in media articles, but in comment sections from all over the internet. (The latest one is entitled “ER Horror Story,” and it will put the fear of god into an atheist.) If the CDC is really serious about creating the most effective guidelines, it will take the time to read these stories.
Today is 12/28/2015, and as of this date, only one of my comments has been approved for posting at the CDC website. Makes you wonder how many other comments have been banned. And it looks like I need to stop using my name when making these comments — perhaps my comments would have a better chance of being posted if they are made anonymously.
January 3, 2015
Your Comment Tracking Number: 1k0-8n6u-4je0
Who will the CDC listen to, grieving parents of overdose victims or chronic pain patients? Which group will be allowed to have their pain treated? Will the CDC enact regulations that will satisfy a grieving parent’s need for revenge, or a pain patient’s right to have access to all treatment options?
Your Comment Tracking Number: 1k0-8n6u-6eyc
It’s easy to see the two major groups commenting on the CDC’s regulations: pain patients and those grieving the loss of a loved one who suffered from drug addiction. Am I the only one confused as to which group these regulations are really aimed at? Is the CDC attempting to standardize the treatment of drug addiction or the treatment of chronic pain? Or has this agency decided that these two conditions are one and the same and should be treated the same?
January 7, 2016
Your Comment Tracking Number: 1k0-8n9g-elns
This Is What Desperation Looks Like:
Yes, this is my wrist, scarred by pain and desperation. These scars represent days when my pain was at a level 10, not attempts at suicide. See, I’ve read that cutting releases endorphins, and those endorphins can decrease pain. (I also saw it on an episode of House, one of my favorite TV shows.) And as I’ve tried almost every other way to manage my pain, I thought it was a good idea to try this one. I mean, if I’m willing to try treatments like hypnosis, why not something like this?
Of course it didn’t work. The cutting just left scars, which I used to be embarrassed about, but now I rarely even notice. These scars are like my stretch marks from pregnancy — they show what this old body has been through. They are like… badges of courage.
Today is a bad pain day for me, and I confess that I’ve thought about trying to release some of that pain by causing myself more pain — attempt to distract myself from the pain in my head by causing pain in another part of my body. In theory, it should work. But in practice, it doesn’t help — nothing could distract me from this level of pain. I know that, but sometimes, desperation doesn’t make any sense…