Go, Cindy, Go!



“We really need to accelerate research into the neuroscience and neurobiology of pain,” said activist and chronic-pain patient Cindy Steinberg during a panel discussion on the topic at the American Association for the Advancement of Science (AAAS) in Washington, DC, on Wednesday.

“It’s pretty awful to live an existence when you’re 24/7 in pain. It’s like being trapped in a prison where you’re being tortured 24/7,” said Steinberg, now national director of policy and advocacy for the US Pain Foundation. In her experience, as she spent five years looking for help, “Pain treatment was at the stage of the doctor being blindfolded and throwing darts and hoping to hit a target.” …

Was at that stage?  You mean, still is, right?

Bilsky, a member of the Dana Alliance for Brain Initiatives, told the story of one 13-year-old whose family doctor told her to “get over it” when she said she was in pain. The family went from doctor to doctor, and when they finally did find one who correctly diagnosed her problem, it was too late—even though there are treatments that could have worked earlier, now this young woman “is homebound 90 percent of the time,” he said. For another patient, Amelia, who was diagnosed faster, treatment did work, and that young woman is active in school and in sports…

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