We are the Chronic Pain Patients of America…

http://www.pharmaciststeve.com/?p=9313

I’m always looking for a pain patient group, so let’s see what this group has to say, shall we?

We have never, ever, taken more medicine than we should.

One should never say “never, ever.”  After all, we’re all human beings and nobody’s perfect. And I find it extremely hard to believe that not one person in this group ever took an extra pill during a pain storm.

Yes, the picture in my head is of a group of people (mostly white men) standing on a mountain, looking down at all of us “flawed” pain patients who haven’t always been able to manage our pain with the dosages allowed and prescribed.

We have never been “high” on anything, in our entire lives. We don’t even know what it means to be “high.”

Yeah, I call total B.S. on this one.

Whenever you take a prescription medication, it takes time for your body to get used to the effects of the drug, including any side effects.  One of the side effects of opioids is the “high” — your brain’s reaction to the introduction of this new chemical — along with the usual ones, like nausea, dizziness, etc.  But the side effects are wide and varied and sometimes hard to pin down.  (That’s true with any drug.)

After taking an opioid, sometimes the brain will call the stomach and say, look, you need to get upset.  I don’t like this stuff. (What happens when I take anything stronger than hydrocodone.)   But then, the brain says, wait, I’m feeling some relief from the pain, I think the pain is getting quieter… (What happened when I took Oxy.)  Maybe then you have to help your brain a little by taking another medication for nausea, but unless you can control this side effect, you basically have to try another opioid.  (Well, pain patients used to have choices…)

But the “high” effect happens a lot more often than just “sometimes.”  This is your brain saying, welllll, lookee here, this makes me feel good!  But within a relatively short period of time, your pain, which is a lot stronger than just about any drug, will rise up and take control.  The pain will tell the brain, look, I’m stealing this good feeling from you — I’m stronger than you, you should know that by now, you stupid twit.

And when the brain starts belittling itself, well, that’s when the real fun begins. 🙂

The length of time a patient will feel this “high” side effect varies greatly, depending on such things like weight, metabolism, and of course, DNA.  But by the time a chronic pain patient is prescribed opioids, it doesn’t take long for the “high” to go away.  Sure, some patients chase that high, but what they’re really chasing is more pain relief.  How do you know how much pain relief can be achieved until you… try?

In conclusion, there is no way that a group of pain patients could make these statements.  You know, without being hypocrites.

People who get “high” on any substance, whether it’s a drug of choice, or alcohol, disgust us.

Funny, intolerance and ignorance disgust me.

They can all go to an island and enjoy altering their states of consciousness, together, alone, for the rest of eternity, for all we care.

In fact, we prefer they would.

I propose the idea that’s visualized in the above photo.  In fact, I’ve got my bags packed… just point me in the direction of this island, where I can escape attitudes like this.

One of three things could be happening here:

Perhaps these deaths were caused by an allergy to the medication. This type of tragedy can occur even with Penicillin.

Or, maybe these people actually took this sometimes-life-saving medicine to get “high,” and they took too much.

They should have been on that island.

On second thought, maybe ya’ll should go live on that island.

Or, they simply could not find enough relief from the medication they were given, and took handfuls instead. We certainly hope not.

Well, I’m glad ya’ll finally arrived at an actual problem.  But you can take your hope and… well, you know.

https://painkills2.wordpress.com/2015/02/17/do-you-recognize-your-addictions/

I think the chronic pain community and the addiction community should come together, although I know that would be really difficult to accomplish.  Many pain patients don’t feel they suffer from any addictions, and many blame drug addicts for the war on pain patients (which is really just an off-shoot of the drug war)…

Voices of pain patients

http://www.pharmaciststeve.com/?p=9313

Google search for:  “Chronic Pain Patients of America”:  4 results

http://www.topix.com/forum/health/T8DT2APRSTHQM42UN

https://www.tumblr.com/search/your%20not%20alone%20together%20we%20stand

https://www.tumblr.com/search/dear%20sir%20or%20madam

http://tierneylab.blogs.nytimes.com/2007/04/23/whats-a-doctor-to-do/?_r=0

C.M.Phillips June 15, 2007 · 9:05 am:  …For the MILLIONS of people out there left under-treated or completely untreated, just trying to get through the day is hard enough but having to fight a seemingly endless battle for pain treatment is practically impossible. I have sent in SO many letters to congress, my state reps., my governor, the pres, news stations…everywhere, WITHOUT EVEN ONE RESPONSE FROM ANYONE!…

Pain patient June 21, 2007 · 3:40 pm:  THE CHRONIC PAIN EXPERIENCE. Chronic pain destroys our normal assumptions about the world. It never releases us from its grip and continually frustrates our hopes for gradual improvement. Ultimately it introduces us to an unsettling counterworld where, as Emily Dickinson described it, time has stopped. (The time before pain is almost inconceivable, or else recedes in memory like a faded dream) It is a place where, gradually, almost without noticing, you find yourself at last all alone. Chronic pain penetrates so completely that it leaves no escape. It lives within us like an unimaginably dull nightmare.

Nightmare is not simply a figure of speech when applied to chronic pain. Lawrence LeShan, from the Institute of Applied Biology, described the universe perceived by the patient in chronic pain as structurally identical with the universe of the nightmare…

Voices of pain patients

https://lifelessonscats.wordpress.com/2015/02/13/my-life/comment-page-1/#comment-418

Under comments:

Outlier Babe
Feb 18, 2015 @ 21:17:55

I have always considered myself a nice person. I like to think I treat everyone equally. Now I find that I do not always act like a nice person. Too many nights with too little sleep. Or too many “aches” (such an innocent light-sounding word) that have gone on for too many decades. I am worn down. Pain grinds, and grinds and grinds, doesn’t it? Big pain drives away all else–there is nothing but the pain. Smaller pain is like a a leak, allowing our energy and happiness to drain away, leaving behind crankiness and depression.

Happy belated birthday. I do what painkills2 advises, and it works for me. I think the trendy phrase now is “Mindful Meditation”, but I just call it “being thankful for the little things”. I’m pretty crabby even about those, since a super-antibiotic turned me celiac-like, and wondful foods used to be a giant part of my little things–all the foods I can no longer eat. Sure miss fresh bread, d#rn it! Grump, grump, grump…. But there are lots of other things. And if you heat up cardboard-like rice bread, and put enough butter on it, even that is not bad 🙂

Stupid. Stupid. Stupid.

Whenever there’s a Windows update, my computer goes bonkers.  So I’ve learned to stop whatever I’m doing when that happens, close everything down, and download the update.

Unfortunately, this doesn’t stop the damage that can result.  Specifically, I tend to lose documents I’ve stored in Notepad (I don’t have Word) — letters, research, etc.  So I’ve learned that for the really important stuff, I need to copy and paste it into an email, then store it in the cloud.  Well, I’m trying to learn this…

I’ve been working for weeks on a letter for my Unum long term disability case, and I’m facing an important deadline.  And what do you know, the latest update totally erased all my work.  The document is gone.  Dust.  Vanished.  And of course, I didn’t save it in the cloud.  Because I’m stupid.  Stupid. Stupid. Stupid.

And I just don’t know how I’m going to recreate it, especially before the deadline…  When you’re in constant pain, it’s so hard to care about shit like this…

In other words, I believe I am fucked.

And computers can really suck:  https://mamamaitri.wordpress.com/2015/02/18/dear-universe/