Voices of pain patients (Maine)

https://www.facebook.com/pages/Opposition-to-Kentucky-HB-1-Reform-HB-217-aka-Pill-Mill-Bill/595049517218134

Kathy Shiplett
January 21 at 1:04pm
I, too, suffer from chronic pain and am being weaned off morphine. I have been using it successfully and responsibly for over 15 years. No health problems other than the intense pain with neuropathy of failed back surgery, and frequent migraines as well. I am 100% disabled, according to the social security administration, and we know how stringent their rules are. I am in so much pain now I am losing all hope, the exact way I felt before I began long-acting morphine. My doctor at the pain clinic said “I will not go up on your meds even if this doesn’t work.” (He said current medical thinking is that people experience the same amount of pain whether they take narcotics or not (!!!). This is not life. It is death. I am in Maine, so you see it is a nationwide problem.

9 thoughts on “Voices of pain patients (Maine)

    • Men Undergo Simulated Labor Contractions To Experience Pains Of Childbirth For Dutch TV Show

      http://www.huffingtonpost.com/2013/01/17/men-simulate-contractions-guinea-pigs-dutch-tv-show_n_2498088.html

      “In the end, Zeno sums up the challenge as torture and wonders if he wants his wife to go through the same pain.”

      As a woman who experienced a 36-hour labor, I’d have to say I agree. But at least the pain didn’t last forever…

      And if you’re looking for sympathy or empathy from health care providers, I’m afraid you’ll be disappointed. (Unless you’re really, really lucky.)

      Like

    • I can tell you from experience. I was on every narcotic you can imagine. I was injured in 2/99. i had dilaudid in my pump for 8 years at high doses and developed sleep apnea severely so I had to detox. i was slowly weaned off and then the last 2 weeks I was put in a professional detox center. It wasn’t a fun experience but helped with the withdrawals. 3 weeks after this the pain was so bad the doctor agreed to let me try percocet 10mg for bad pain times. Over the next 2 years I was taking 3 percocets a day and then he added a small amount of morphine in my pump. In august of 2014 I had a heart attack and almost died from sleep apnea. My doctor said no more narcotics. I cried for weeks with severe pain and didn’t know how I could live like this.. Well long story short I am doing better now than I have in years. It did take about 3 months for my brain to adjust to not having narcotics and I think once it did I didn’t have as many highs and lows as I did before. I still have bad flare times and have to stay in bed, but I have better good days. Just wanted to let you know my experience. I will you the best of luck and will be thinking of you…. Julie

      Liked by 1 person

      • Thanks Julie, sharing our experiences is important, and I appreciate your comment and your thoughts…

        Although I looked at a pain pump as an option, I decided against it. I suppose it was my fear that sometime in the future, I would lose my ability to achieve effectiveness from pain medication. (Am I the only pain patient who has nightmares of being awake during surgery?)

        After I stopped taking prescription medications, I think it took longer than 3 months for my brain to adjust to the new normal. But then, I was forced to detox on my own, so maybe that’s the difference in our experiences.

        I can’t tell you how happy it makes me to know that you survived it all, especially as I rarely read stories about patients who have. We Survivors should have our own island, with massage therapists at our beck and call, soft furniture everywhere, surrounded by rose bushes and honeysuckle, and serenaded by Jared Leto. 🙂

        Like

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